You Take the Good, You Take the Bad, You Take Them Both and There You Have…

Our life lately.  We still have fluid on those tiny Chinese lungs.  Bummer.

It’s not any MORE fluid then it was before.  So, that’s good.  It’s not SO much fluid that they feel that Dolly’s heart is in active failure now.  That’s good.

They feel that this just may be the fluid she lives with until we can do something to improve her heart function.  Bummer.

We are increasing the dose of her diuretic (Lasix) to try to get rid of it, but also because she gained almost a kilo worth of weight since her last visit.  That’s GREAT.  My girl, she likes her some food.

She is getting chubby.  I asked if the chub on her newly rounded face could be edema (aka swelling, which is a sign of heart failure), but they said absolutely not.  It’s chub.  My baby is getting fat.  I LOVE that!!!

We are cleared to have her heart cath done.  On Monday.  Yes, you heard me.  Monday.  As in 5 days from now.  

Dolly will have to undergo general anesthesia and because of the fluid on her lungs, she’s earned herself a stay in the PICU for the night of her cath.  The Cardiology team is a little concerned that extubating our Dolly may prove difficult.  She will have a tube breathing for her while she sleeps.  Once they start messing with her already stiff little lungs, getting her off the breathing machine may take time.  When I asked how much of a possibility it was that she would leave the cath lab still intubated, they told me “remote”.

My mama heart hates hearing all the “remote” possibilities that it heard today.  

My mama heart hates entering the PICU as anything but a paid employee.

My mama heart is going to HATE seeing her baby earn a new scar.  The first of many.

My mama heart likes the idea of healing her baby.

This is the first step in that journey.  

–FullPlateMom,
who takes the good, and the bad, but would prefer a little more of the former.  

3 Comments Add yours

  1. Drea says:

    I’m am relieved that they are able to get her in for her cath so quickly. My prayers and thoughts will be with you on Sunday night and Monday. I will be praying for your peace of mind and for an uneventful procedure and quick healing.

    Like

  2. TnL says:

    I am so sorry for what you are going through. You are in our thoughts and prayers. My lil man stayed intubated for a little over an hour in the PICU after his cath pre-op. The hardest part was after he was awake and extubated keeping him laying flat. The last hour or so was a nightmare. Remember to bring lots of things to keep her entertained when she can’t move. GOOD LUCK!

    Like

  3. Global Girl says:

    Congratulations; your family is absolutely beautiful. Wishing you joy and love!Kate

    Like

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