Broken heart, Tess

It All Falls Away

Dolly with no tube

As you can see, our girl is looking pretty comfortable.  We lost a few tubes today, it was as if they just fell away.  A few other things fell away too.  Dolly is no longer sedated.  Keeping her comfortable has been a challenge, and that is putting it mildly.

She had a scary pain-related episode today.  It involved her insisting she didn’t hurt and me believing her until she nearly put herself in danger by not having proper pain management.  Why would she do that?  Because she came from a hard place where no one ever responded to her cries of pain before.  So, why bother saying anything now?

Because I reply.  Her dad replies.  She doesn’t want to put us out.  She has verbalized she’s scared about “making us work too much.”  Yes, she had said it.  Heartbreaking.

This is where we are now.  Tomorrow we will be some place else.  That will be better.  This will get better.

–FullPlateMom, who would like to be anywhere but here.

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