It’s All Unicorns and Rainbows.

Today, Tess was seen in Cardiology Clinic for her first imaging post-op.  She had x-rays, an Echocardiogram and then an check-up with her surgery team.  There were some concerns about Tess’s mitral valve.  It was damaged during surgery which caused her to need a second run of bypass and prolonged her surgery by a few hours.  I usually sweat these follow-up appointments.  This time, not so much.  Our girl looks SO good.  It has to be all unicorns and rainbows, right?  0005027_prismfoil-rainbow-unicornIt totally was.  She surprised us all by having Oxygen saturations of 99% but still having some tiny holes in her wall between her two ventricles.  Experts were called in to look, everyone put their heads together and the decision was to do absolutely nothing about those holes.  I like nothing.  Tess looks good.  Nothing works for me.  She was taken off of her remaining heart med.  We will see pulmonary next month and maybe she can be taken off of her one remaining lung medication.  She would LOVE that.  All her valves looked absolutely beautiful, and after bringing in every Medical student, Resident and PA in the land, we all agreed…

Tess is an absolute miracle.

Unicorns & Rainbows-1

After we had established that she was doing well in the here and now, I dared to step out of the present, and into the future.  This was something I hadn’t done since December of 2012 when her future was labeled “terminal.”  In that moment, we decided that we could only worry about now, the future no longer held any meaning.  We just needed her to live for now, so we would all live for right now.

Today though, I asked about the rest of her life.  I asked what her future would look like.  Would she live a relatively normal life?  If she chose to, were biological kids a possibility?  Can she travel?  Could she visit her baby’s in China, or her brother and sister’s homeland of Ghana?

All of these things are possible.  Her life is full of possibilities.

We discussed the impending arrival of her sister, and what her heart needs would be.  The doctors are unconcerned.  Tess asked her beloved Cardiologist, “Will my Gigi have to hurt like I did?”  When they answered that they don’t think she will, Tess pumped her fist in the air and got a HUGE smile on her face.  The PA, RN and Resident in the room all cried.  They think Gigi looks wonderful and that her possibilities are limitless as well.

I don’t know what I did to deserve this.  I don’t have a clue.  I am going to continue to carry it forward though, and to teach Tess to carry it forward as well.  In the last couple of weeks, four of her “babies” in China were locked by their prospective families.  Sadey Joy, Rheta, Eugene, Belinda, you were loved, named and claimed by a tiny warrior with an ENORMOUS heart before your forever family found you.  Tess and I are so honored to have been a small part of your journey.

–FullPlateMom, who wants you all to know that the absolutely AMAZING dress that Tess is wearing can be purchased to help bring home a couple of very special little people.  One of them may have been mentioned above.  Please go and check out The Grace Effect for some amazing, handmade children’s clothes and accessories.

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