Would You Do It Again?

After everything we went through with our sweet Dolly, it’s natural for people to wonder if we knew then what we know now, would we do it again?  Would we risk her life to try for a full repair of her heart?  Would we go through all this for another child?  Would we ever consider…

All Kinds of Changes

Sorry for the radio silence for the last week.  We’ve had some big changes around Full Plate Manor.  First of all, our house is ripped to shreds.  We’re slowly putting it back together, and the remodel will be so lovely when it’s finished, but for awhile there, we were living in a construction zone…with ten…

Beads of Courage

When Dolly was in the hospital this last time, I had to look for ways to fill my time during the days she was sedated.  I was told about a program called Beads of Courage.  I had heard of Hero Beads for children undergoing cancer treatments, but I didn’t know that anything like this existed…

I Admit Weakness

I remember coming home from a nearly five week stint in Ghana feeling grateful, but so unsettled because I knew in my heart that life would never be the same.  I had gone to Ghana thinking I was doing something amazing for children who needed me.  I left with two children who did need me,…

Learning to Live Again

We’re HOME!!!    As we pulled up to the house and Dolly saw all the kids run at the car, she began to cry.  We’re not sure why.  I think she was overwhelmed.  I feel that way too.  I had felt that way all day.  On a day when I should have been overjoyed to…

The Little Things

It is looking highly likely that Dolly will be discharged from the hospital tomorrow.  Yes, we are going HOME!!! And, it’s likely we’ll be going home without supplementary Oxygen.  I’m pretty sure no one thought that was going to be possible given the condition of Dolly’s lungs.  I know that is sounds to be small…

In That Room

Today I watched my daughter walk down the hallway.  Walk.  72 hours ago at this time, she was still on a ventilator.  48 hours ago at this time, she couldn’t sit up.  24 hours ago at this time, she could barely hold any weight at all on her weak little legs.  Kids recover quickly, I…

What We Learned

Late afternoon yesterday, we decided to go looking for the cause of Dolly’s low Oxygen saturations after a surgery that should have had us close to normal.  There was some disagreement on the cause between the Pulmonary, Cardiothoracic Surgery and Cardiology teams.  We did another Echocardiogram and then a “bubble study” to watch the path…

One Weary Week.

It was one week ago right now, like at this exact minute, that I whispered goodbye to Dolly, that I told her how many people were praying for her, and that she returned my comment with a “I can feel it, mama, and I feel SO strong.”  It was one week ago that the 6-8…

It All Falls Away

As you can see, our girl is looking pretty comfortable.  We lost a few tubes today, it was as if they just fell away.  A few other things fell away too.  Dolly is no longer sedated.  Keeping her comfortable has been a challenge, and that is putting it mildly. She had a scary pain-related episode…

A Tiny Chinese Pair

When we adopted Poppy in September, we weren’t sure how Dolly would react.  There had been much talk in our home of “her baby.”  But, Dolly had NO clue that “her baby” weighed just shy of two pounds as much as she did, and was a WILD WOMAN.  Poppy took our home by storm.  She…

The Next Thing

I’m a lady who, when one thing is done, immediately moves on to the next.  I’m a linear thinker, who likes to clear hurdles and then immediately move forward to the next thing.  This isn’t the time for that.  Yesterday, we began the process of waking Dolly slowly.  After all the trauma she has endured,…