Halloween 2017

2017’s theme is “Just keep swimming!”  So, this seemed so appropriate. Our little Dory is struggling a little.  Her lungs are always troublesome, but her weight is now a concern too.  We’re trying to figure out why she’s so very fragile. Luckily, she’s got people to swim right along beside her.  Always. While her body…

Scenes From A Summer Without You.

We’re at that odd stage in the adoption process when we’re close enough to the end goal that we feel like we’re missing someone from our family, but we’re still far enough away that I find myself living in a constant state of frustration.  It’s an odd feeling to miss someone you’ve never actually met….

Lazy Beach Days.

We just returned from seven lazy beach days courtesy of Spring Break.  These types of trips are becoming more and more important to me as time slowly ticks away with some of our kids.  Ally is finishing up her Freshmen year of high school, Cam will follow her next year. My time with them feels…

First Birthday Understood.

Today Gigi turned 5, and it is the first birthday she understood.  We actually celebrated on Friday, because yesterday we took off for a Spring Break adventure. “Soon, you sing!” “Cake, I LOVE IT!” “Presents, you give me!” After watching all of her siblings celebrate their special days, she understands what all the fuss is…

An Intro To Sound

We turned Gigi’s Cochlear Implant on yesterday. She got her first intro to sound, because, yes, she CAN hear. All the electrodes in the implant are turned on. We weren’t sure she would tolerate that at first. She handled it like a champ though. I did take a video. I showed it to Joe and…

The Night Before Activation

Dear Gigi, It’s the night before the activation of your Cochlear Implant.  This has been a LONG time coming, sweet pea.  A Facebook memory just popped up yesterday reminding me that it was a year ago now when you received your first hearing aids.  A year.  That is not normal.  Some kids have Cochlear Implants…

Physical & Psychological

Before all the adoption paperwork updates, I think everyone might want a Gigi update.  She is doing so well!  We are out of the woods on any bleeding issues that might have occurred from the reinsertion of her implant.  The plan is to activate it on April 5th.  We are so excited at the new…

Paperchasing from the Halls of the Hospital.

I do my best adoption prep from the ICU.  It’s where all of Gigi’s paperwork was done, while Tess had open heart surgery.  This time, Isabel’s paperwork is being done from Gigi’s bedside.  She is spending a couple of days in the ICU as we re-insert her Cochlear Implant and try to make sure her…

Re-implanting, the Guilt that Comes with Another Try.

On Friday I made a call to the surgery scheduler for the Otolaryngology Clinic at our local children’s hospital.  We have made the decision to try to implant Gigi’s left cochlea again.  She called back today.  We are on the schedule for re-insertion of a left-sided cochlear implant on March 16th. Yes, after everything Gigi…

Give Me Your Tired…

Gigi is home and recovering beautifully. Thank you so much for asking. Her energy level improves daily. The area of her scalp that was so damaged by the multiple surgeries she had to stop the bleeding in her head is healing little by little day by day. Her courage amazes me. She came home, she…

Fly Home Buddy, I Work Alone.

We have now been inpatient with Gigi for eight days.  I haven’t really slept in a week and a half, since her initial surgery and rough recovery.  I have watched Finding Dory more times than I could have ever imagined.  It is what comforts her right now, and the girl who almost died gets whatever…

Full Circle

One week ago, Gigi, our Deaf 4 year old, had a Cochlear Implant (CI) inserted on the left side of her head.  I didn’t write about it here because this decision comes with some controversy.  The Deaf community often feel this is an attempt to “cure” your child’s deafness.  It was not.  That is all I need…